Dah buat hernia repair

Dah buat ponn hernia repair untuk Adrina Amani on 19/3 yang lepas.  Saat yang mendebarkan dan banyak marah- marah at the same time doa doa doa.  Why marah- marah, dok marahkan hospital ler.... kan dah berapa kali tertangguh ni.  2 kali ditangguhkan hospital dan a few times by us jugak ler sebab Adrina selalu tak sihat.

Kitorang buat dekat HUKM.  Kalau di Malaysia ni,, hospital government yang boleh buat hernia repair ni adalah HKL dan HUKM  (Semi).  Private adalah KPJ Ampang Puteri, Gleaneagles Ampang dan UM Specialist Center adalah center terbaru yang I tau boleh buat.  Kalau di HKL and HUKM ni nak tunggu turn tu faham- faham la yer... If u tangguh sebulan, lagi sebulan baru dapat lagik appointment.  Itu pon subject to your child's health.

Antara risk yang boleh berlaku untuk pembedahan ni adalah excessive bleeding (ikut doctor sangat sangat rendah) dan juga risk anaesthetic pada anak premature macam Adrina ni (sebab kena buat full anaes).  Antara nye ialah lungs dia boleh collapse semasa pembedahan.  Scary, but this was something that needed to be done.  Tak buat, ada pulak risk strangulation.  Lagi bahaya kalau buat emergency.  So kita tawakal dan buat lah.

Adrina was warded one day sebelum procedure tu (18/3) untuk monitor keadaan dia.  Anak datang sihat Alhamdulillah despite malam tu ada demam and muntah muntah kejap.  Tapi dah nama pon hospital, ada jugak penjaga/ pelawat yang batuk- batuk, she started coughing jugak.  Mujur kitorang ada bawak puff dia.  All the meds were ready to make sure she's well.  Kena puasa starting 3am and Alhamdulillah, this was also made easy for both of us.  Nak tunggu procedure at 9am, Adrina had been so wonderful.  Sampai nurses semua buat lawak cakap I dah bagi ubat tidur dekat anak hehehe.

Dah masuk operation theatre pon I sempat lagi main- main dengan dia.  We played with the TV and the surgeon siap turun kan screen nak bagi Adrina tengok camera.  Such a nice guy, Dr Syaril kot kalau tak silap nama dia.  If I'm not mistaken kalau di HUKM, it'll either Dr Majmin or Dr Syaril yang akan perform the procedure.  They allowed me to accompany her until the anaes took effect.  She was a strong baby, she fought it real hard!!!! After she fell asleep, a lady doc asked me to kiss her.  Masa tu lah mata Mommy masuk habuk dengan banyak hehehe.

Waited outside with husband.  Asked husband to recite Yassin, and I zikir the whole time.  Tunggu, expected to finish 10.15am.  10.20am belom ada panggil dada dah mula berdebar... 10.25 suddenly diorang wheeled her out from OT to recovery and they called me.  She was already awake, asking for milk!  Lapar!  Orang lain I tengok chill jer mabuk mabuk ubat lagi.  Adrina dok nangis nangis nangis, I was trying to calm her and she just kept waking up.  Tapi masa tu sangat- sangat syukur semua selamat :) Syukur syukur.

Apa dia procedure yang dijalankan tu?  Kalau menurut doctor, HUKM is the only center yang buat laparoscopic hernia procedure ni, yang lain- lain open surgery.  I tak pasti if he was referring to the private center jugak.  Lupa tanya la... Tapi the difference between open and laparoscopic ni dia cakap, recovery is faster with laparoscopic.  Tapi % of recurrence lebih rendah dengan open surgery.  Beza antara 2% dan 5% open dan laparoscopic respectively.  Wallahualam.  Diorg tebuk 3 lubang dekat perut (1 pusat, dan 2 d kiri kanan perut).  Yang pusat tu untuk camera lah.  Hernia budak kecik ni ada di both sides so diorang dah jahit both sides.. Harapan ialah, tiada recurrence.  Next question I forgot to ask was - how do I check for recurrence?  Hehehe Mommy... Mommy...

Recovery went well.  Malam pertama tu, ada berdarah sikit sebab kena kopek dengan kakak- kakak.  After that it was all OK.  A week after berdarah and berair sikit sebab dia sendiri kopek.  Masuk malam kedua dia dah bole bangun main... Terlompat- lompat terkinja-kinja tak macam sakit... Heran sungguh.  I dulu masa remove galld bladder punye la 2 minggu sakit weh nak angkat body.

Ramai pelik, eh Adrina girl kan? Camno bole dapat angin pasang/ hernia ni?  Sebab dia girl, premature girl... usus dia tak kuat sebab tu bole bocor. and prem babies kan kalo you all perasan suka meneran? Hemm sebab tu lah tu bole bocor kot.

Ok dah panjang lebar sangat ni.  Sanggup tak tengok gambar... Jommm.

Lactose Intolerance dan alergic pada soy pulak?

Gosh I must tell you, with Adrina it is always the milk issue.  With, of course among other things macam eczema, sensitive airways dan sebagainya... But back to milk, kalau ada read my previous posts here tentang changing her milk, from breastmilk to an AR milk due to reflux.  Alhamdulillah nearing umur setahun, masalah reflux dia dah selesai.  As in, one day dia just stop muntah- muntah altogether.  How fun is that.

So lepas tukar ke susu biasa, she was fine for a while, drinking susu yang sama macam Zehra.  Tiba- tiba one day tu dia kena rota virus (again).  Sejak kena diarrhea and muntah- muntah from the rota virus tu, kerap sangat dia diarrhea.  So bila check dengan Paed, dia suruh I stop kan sementara cow's milk.  Memang kitorang at the time dah start bagi dia Similac LF (Cow's Milk tapi lactose-free).  Hemm dasar anak omak yer.  I also lactose intolerance.

EH so caner cerita alergic soy milk ni timbul?  Kitorang discover bila hubby @ AhBob tersalah beli.  Similac dengan Isomil kan from the same manufacturer, Abbot.  It uses similar (almost) font dan warna merah hampir hampir serupa (between Similac LF dan Isomil which is soy-based).  Kalau tak Similac ni ala-2 kuning gold kaler dia.  Anyway, kita discover tu pon dah lambat.  Adrina warded masa tu, and malam yang hubby dah terbeli isomil tu, memang dia yang prepare susu sampai la esoknya dia ambik turn jaga Adrina kat hospital.  Malam tu I balik kerja, memang shocked tengok seluruh muka dia, badan dia penuh red spots.  Hey its so scary sampai doc performed blood test untuk dengue berkali- kali k!  Bila doc tanya, alergic ape-ape, I didn't know sebab I tak perasan lagi susu tu ialah Isomil, instead of Similac.  Yarabbiii... Esok pagi nye bila turn I jaga, baru I tengok.  Oh no.  Soy-based.  Terfikir, soy = high in protein.  My first daughter alergic pada telur sebab protein.  Twins alergic ayam pon sebab tak ready untuk process protein... Its the milk!  Eh I terfikir menda tu pon dah nak petang sangat kot... Time tu doc dah tak round dah.  Kami pon dah discaj, tak dan I mention kat doc.  So last week bila pegi follow-up I mention kat doc, doc cakap. yes, it could be.

Yes, it is logic.  I pon ada baca sikit- sikit pasal protein alergy in babies ni.  I mean, yes despite nak masuk umur 1 year lagi seminggu macam tu masa tu, diorang internally baru 10 months.  I suspect, being premature that they are, ada benda yang I kena delay kan sikit untuk introduce.  So you see, now albeit turning 1 year old, I belum lagi bagi diorang makan macam- macam.  Diorang, too different dari kakak dulu...

Tapi korang jangan mistaken plak... Milk or soy alergy ni 2 benda yang berbeza.  Milk alergy ni berlaku bila anak you alergy pada milk protein yang ada dalam susu tu.  Bila immune badan nampak jer milk protein ni, dia akan cuba fight sebab dia ingat kan ni musuh.  Hence, the red spots la ya.  Lactose intolerance on the other hand, adalah inability untuk ko digest sugar lactose (gula dalam susu kalo tak silap I).  Lac intolerance ni sangat incommon bagi infant, tapi boleh berlaku.  Dulu ada satu Doc explain kat aku, ko nak digest lactose ni ko perlukan sejenis enzyme ni.  Kalo ko takde enzyme ni, memang takleh.  Perut ko pon memang takkan get used to it.  Akan baik ke tak situation ni, I rasa untuk infant, depends.  It can go away later on.  Tapi kalau dah 'remaja terlebih' macam I ni ha... Hemm memang permanent condition dah ni.  Bila pregnant and breastfeeding la sengsara weiii.  Eh kalau nak more info, sila la renangi lautan google hehehe.

I cuma share keadaan I sekarang jerla.  I pon kalau tak tanye Paed terchenta, memang renangi google jer.  So boleh la faham sikit- sikit.  Kesimpulan citer ni macam ni, anak I tak alergic pada milk cow, but instead tidak tahan laktosa.  Tapi juga tidak berupaya memproses protein dalam soy milk... Jadinya, solution sementara kami adalah bagi dia Cow's milk tanpa laktosa.  Boleh gitu... Yer.. gitu.. gitu

11 months in 11..10..9..8..7..6..5..4..3..2..1..

Time flies.  Are you kidding, no, did not fly that fast.  Hanya I yang terasa betapa perlahan nye masa bergerak hehehe.  Sebab kat dalam hati ni dok rasa tak sabo wehh cepat 2 tahun.  Hurry up kids, turn 2, tomorrow and be healthy. 

Our latest hospital stay January 2014.

Twins dah pecah rekod Kakak... Dalam masa 10 bulan, masing2 dah warded 5 kali.  Hebatnyeeee.  Yang terbaru ni bronchiolitis (Zehra) dan rota virus (Adrina).  Kesian diorang isk isk.  Nama pon dok taska, Mommy kena redha jer.  Package tu nama nya hehehe. 

Part makan, memang semua hebat- hebat.  Berebut- rebut, bertampar- tampar, bertendang- tendang, bertolak- tolak... Ber ber ber.... Hehehe

Adrina dah berenti masalah reflux nye.  Dah makin debab.  Cuma hal hernia masih belum selesai.  Dia asyik batuk- batuk semput so tak dapat nak proceed dengan hernia repair.  Ntah ler, ade hikmah la kot kan?

Zehra plak dah develop chronic attachment dengan Mommy.  Ya Ampunnnnn clingy giler yang tahap Mommy rasa macam nak nangis tahan nak gi toilet kekadang.  Stress pon ada gak.  Separation anxiety?  Wah memang di teran teran tangisan nye itu.  Sekian.

Both of them dah boleh bangun, berpegang pada whatever equipment yang ada depan mata.  So far belum nampak masalah development.  Adrina's development agak slow compared to Zehra, tapi that's because badan dia debabbb banding Zehra.  She is so bubbly, tho.  Heheh I wonder dapat dari mana :).  I guess development-wise, yepp memang diorang 2 months behind lah kot?  Kita track development dia as 8 months gitu, even tho dia dah 10 bulan.  Aci kan...

Dah mengutip, demanding, mengamuk nangis hentak hentak kaki.  Ngeeeeee.  Mommy ada 3 drama queens nampaknye.  Good luck, Mommy.  Memang cerah masa hadapan :)

Zehra Vs Adrina and the headband

Now, I believe I should've captured this moment as video instead of still photo.  I got too excited.  LOL.  Adrina does this all the time... Toys, headband, milk bottle, you name it.  If she has interest in it, she'll grab it from her twin, Zehra.  Zehra, is the 'manja' type.  She cries.  She fought back, but cries when she lost.  

Please excuse the photo quality :)

Hard

My second princess, the elder twin, Zehra Amani is hospitalised again. My life is so out of order. Work, my other kids, husband, myself.  I am not sure what kind of test this is or if I can take it anymore, but it sure as hell aches.  This is too hard.  I can be strong.  But how strong.

All I can do is pray that lil princess be fine and healthy again. Such small progress since evening,  but am sure the strong girl will be better in no time.

We are suppose to do an echo test for her soon to rule out any issue with the heart.  She was born prematurely so this is important.   We really hope this test turns out negative.  Need your prayers too, friends. 

And you... nasty pneumonia.   I forbid you from seeing my princess again.  Can you believe, this happens after spending RM740 on jabs.  Ah well. 

P/S: I miss my Ayesha and Adrina at home. And my.... darling *grin*

Away

That's why.... Mommy always tell you to...

 

#Pesanan khidmat masyarakat ini dibawakan oleh, Mommy D